{"id":2389,"date":"2026-02-22T21:46:17","date_gmt":"2026-02-22T18:46:17","guid":{"rendered":"https:\/\/neoberidhaber.kahveciyazilim.com\/?p=2389"},"modified":"2026-02-22T22:58:51","modified_gmt":"2026-02-22T19:58:51","slug":"smali-esmadan-sevindiren-haber","status":"publish","type":"post","link":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/2026\/02\/22\/smali-esmadan-sevindiren-haber\/","title":{"rendered":"SMA&#8217;l\u0131 Esma&#8217;dan sevindiren haber!"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">\u0130zmir&#8217;de ya\u015fayan 19 ayl\u0131k Spinal Musk\u00fcler Atrofi (SMA) Tip 1 hastas\u0131 Esma G\u00f6n\u00fclta\u015f, Dubai&#8217;deki gen tedavisinden faydaland\u0131ktan 1,5 ay sonra T\u00fcrkiye&#8217;ye d\u00f6nd\u00fc. K\u0131z\u0131n\u0131n kampanyas\u0131na destek olanlara te\u015fekk\u00fcr eden G\u00fcl\u015fah G\u00f6n\u00fclta\u015f (37) &#8220;Kampanya s\u00fcreci sanki hi\u00e7 bitmeyecek gibiydi. Bazen \u00e7ok umutsuzlu\u011fa kap\u0131l\u0131yordum. \u0130lac\u0131n\u0131 alana kadar rahat de\u011fildik. \u0130la\u00e7 damara girince k\u0131z\u0131m\u0131n kurtulaca\u011f\u0131na inand\u0131m&#8221; dedi.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-1024x576.webp\" alt=\"\" class=\"wp-image-2390\" srcset=\"https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-1024x576.webp 1024w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-300x169.webp 300w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-768x432.webp 768w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-332x187.webp 332w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-664x374.webp 664w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-688x387.webp 688w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646-1044x587.webp 1044w, https:\/\/neoberidhaber.kahveciyazilim.com\/wp-content\/uploads\/2026\/02\/k-a-m-p-a-n-y-a-s-i-t-a-m-a-m-l-a-n-i-p-d-u-b-a-i-y-e-g-i-d-e-n-s-m-1180433-350646.webp 1280w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Bornova&#8217;da ya\u015fayan Halil (40)-G\u00fcl\u015fah G\u00f6n\u00fclta\u015f \u00e7iftinin 4 \u00e7ocu\u011fundan en k\u00fc\u00e7\u00fc\u011f\u00fc olan Esma G\u00f6n\u00fclta\u015f&#8217;a topu\u011fundan al\u0131nan kanla do\u011fumundan bir hafta sonra SMA Tip 1 te\u015fhisi konuldu. Minik Esma, belirgin bir kas kayb\u0131 ya\u015famadan, ge\u00e7en 24 Kas\u0131m&#8217;da Dubai&#8217;de gen tedavisinden faydaland\u0131. Kampanya s\u00fcrecinin tam 1 y\u0131l s\u00fcrd\u00fc\u011f\u00fcn\u00fc anlatan anne G\u00fcl\u015fah G\u00f6n\u00fclta\u015f, k\u0131z\u0131n\u0131n ilac\u0131n\u0131 ald\u0131ktan sonra t\u00fcm huzursuzluklar\u0131ndan kurtuldu\u011funu ve mutlu bir bebek oldu\u011funu s\u00f6yledi. G\u00f6n\u00fclta\u015f, &#8220;Esma 16 ayl\u0131kken kampanyam\u0131z bitti. Esma ilac\u0131na kavu\u015ftu. Sesimizi duyurmaya \u00e7al\u0131\u015fmak ve \u00e7aresizli\u011fimiz \u00e7ok zordu. Bir hastal\u0131k var \u00f6n\u00fcn\u00fczde, ama \u00e7aresi de var. \u00c7are bizim halk\u0131m\u0131zd\u0131. Bunu duyurmak \u00f6nemliydi. Bir a\u011flad\u0131k, bir g\u00fcld\u00fck ama \u00e7ok \u015f\u00fck\u00fcr s\u00fcreci atlatt\u0131k&#8221; dedi.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>&#8216;\u0130LACINI ALDIKTAN SONRA HAREKETLEND\u0130&#8217;<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dubai&#8217;de Esma&#8217;ya bir dizi test uyguland\u0131\u011f\u0131n\u0131 ve ilaca uygunlu\u011funa bak\u0131ld\u0131\u011f\u0131n\u0131 belirten G\u00f6n\u00fclta\u015f, k\u0131zlar\u0131n\u0131n herhangi bir kas kayb\u0131 ya\u015famadan ilaca kavu\u015fmas\u0131n\u0131n mutlulu\u011funu ya\u015fad\u0131klar\u0131n\u0131 kaydetti. 13 ayl\u0131kken y\u00fcr\u00fcmeye ba\u015flayan Esma&#8217;n\u0131n ilac\u0131 ald\u0131ktan sonra daha da g\u00fc\u00e7lendi\u011fini belirten G\u00f6n\u00fclta\u015f, &#8220;24 Kas\u0131m&#8217;da ilac\u0131n\u0131 ald\u0131. \u0130lac\u0131n\u0131 ald\u0131ktan sonra hareketlenme geldi. O huzursuzluk gitti. B\u00fct\u00fcn halk\u0131m\u0131za te\u015fekk\u00fcr ederiz. \u00c7ok mutluyuz. Esma y\u00fcr\u00fcrken yere d\u00fc\u015f\u00fcyor, kendini tutam\u0131yordu. \u015eimdi rahat y\u00fcr\u00fcyor. A\u011fr\u0131lar\u0131 yok. Devaml\u0131 burnu ak\u0131yordu. \u0130lac\u0131 ald\u0131ktan sonra huzurlu bir Esma oldu. \u00c7ok kas hastas\u0131 var. Aileler \u00e7aresiz. B\u00fct\u00fcn bebekler ilac\u0131n\u0131 als\u0131n, sa\u011fl\u0131\u011f\u0131na kavu\u015fsun istiyorum. Esma erken tan\u0131 ald\u0131, ilac\u0131na erken kavu\u015ftu. Orada baz\u0131 bebekler g\u00f6rd\u00fck. Esma daha sa\u011fl\u0131kl\u0131yd\u0131. \u00c7\u00fcnk\u00fc kas kayb\u0131 yoktu. NG ya da trakesi (beslenme hortumu) yoktu. Giden kas kayb\u0131 yerine gelmiyor. \u015eu an sa\u011fl\u0131kl\u0131 bir bebek gibi. Di\u011fer evlatlar\u0131m gibi b\u00fcy\u00fcyor&#8221; diye konu\u015ftu.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>&#8216;ARTIK K\u0130LO KORKUMUZ B\u0130TT\u0130&#8217;<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Tedaviden \u00f6nce Esma&#8217;y\u0131 kilo almamas\u0131 i\u00e7in beslenmede k\u0131s\u0131tlad\u0131klar\u0131n\u0131 anlatan G\u00f6n\u00fclta\u015f, k\u0131zlar\u0131n\u0131n t\u00fcm \u00e7ocuklar gibi her istedi\u011fini yiyebilmesinin de mutluluk verici oldu\u011funu ifade etti. G\u00f6n\u00fclta\u015f, &#8220;Eskiden kilo almamas\u0131 gerekiyordu. \u00c7ok \u015f\u00fck\u00fcr yeme\u011fini rahat yiyebiliyor. Art\u0131k o korkumuz bitti. Haftan\u0131n 3 g\u00fcn\u00fc fizik tedaviye gidiyoruz. 8 ay gidece\u011fiz. Daha sonra Esma&#8217;n\u0131n durumuna g\u00f6re karar verilecek. Bacaklar\u0131na g\u00fc\u00e7lenmesi i\u00e7in bandaj tak\u0131yoruz&#8221; dedi.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>&#8216;EVLAT \u0130LE SINANMAK \u00c7OK ZOR&#8217;<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Anne G\u00f6n\u00fclta\u015f, &#8220;Kampanya s\u00fcreci sanki hi\u00e7 bitmeyecek gibiydi. Bazen \u00e7ok umutsuzlu\u011fa kap\u0131l\u0131yordum. Ba\u015faramayaca\u011f\u0131z diye korkuyordum. Esra, ilac\u0131n\u0131 alana kadar rahat de\u011fildik. \u0130la\u00e7 damara girince kurtulaca\u011f\u0131na inand\u0131m. Rabb&#8217;im kimseye bu ac\u0131y\u0131 vermesin. Evlat ile s\u0131nanmak \u00e7ok zor. 6 ya\u015f\u0131ndaki o\u011flum kampanya bitince mutluluktan z\u0131plad\u0131. Sadece Esma&#8217;y\u0131 de\u011fil, di\u011fer \u00e7ocuklar\u0131m\u0131 da kurtarm\u0131\u015f oldular. \u00c7\u00fcnk\u00fc onlar\u0131n da psikolojisi bozulmu\u015ftu&#8221; diye konu\u015ftu. <strong>(DHA)<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Kaynak;<a href=\"https:\/\/www.egedesonsoz.com\/smali-esmadan-sevindiren-haber\" data-type=\"link\" data-id=\"https:\/\/www.egedesonsoz.com\/smali-esmadan-sevindiren-haber\">https:\/\/www.egedesonsoz.com\/smali-esmadan-sevindiren-haber<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"\u0130zmir&#8217;de ya\u015fayan 19 ayl\u0131k Spinal Musk\u00fcler Atrofi (SMA) Tip 1 hastas\u0131 Esma G\u00f6n\u00fclta\u015f, Dubai&#8217;deki gen tedavisinden faydaland\u0131ktan 1,5&hellip;","protected":false},"author":2,"featured_media":2408,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"csco_display_header_overlay":false,"csco_singular_sidebar":"","csco_page_header_type":"","csco_page_load_nextpost":"","csco_post_video_location":[],"csco_post_video_location_hash":"","csco_post_video_url":"","csco_post_video_bg_start_time":0,"csco_post_video_bg_end_time":0,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2389","post","type-post","status-publish","format-standard","has-post-thumbnail","category-saglik","cs-entry","cs-video-wrap"],"_links":{"self":[{"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/posts\/2389","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/comments?post=2389"}],"version-history":[{"count":1,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/posts\/2389\/revisions"}],"predecessor-version":[{"id":2391,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/posts\/2389\/revisions\/2391"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/media\/2408"}],"wp:attachment":[{"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/media?parent=2389"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/categories?post=2389"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/neoberidhaber.kahveciyazilim.com\/index.php\/wp-json\/wp\/v2\/tags?post=2389"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}